Local Healthwatch working together for change
Local Healthwatch across the region have been working together to make sure people’s voices and experiences are heard by those involved in making decisions about health and care services.
During 2025–2026, the Healthwatch North East and North Cumbria (NENC) network brought together insight from local communities to inform decision making across health and care.
Working as a coordinated network of 14 local Healthwatch, we supported the health and care system to understand what people experience in real life. What works, what doesn’t, and what needs to change.
The Working Together for Change report below gives an overview of the diverse work that our local Healthwatch network has been involved in throughout the year including:
- Primary care access: understanding what works and what doesn’t
- Winter care: helping people understand winter care and pharmacy options
- Shaping WorkWell: a new service designed to help people with long term health conditions stay in or return to work
- Listening on sensitive issues: palliative and end of life care
- Influencing national policy: developing NHS Online
- Workforce Voices: making national work more accessible
- Mental health rehabilitation: what helps people recover – and what puts them at risk
Read Healthwatch North East & North Cumbria: Working Together For Change
Hearing from unpaid carers
The challenges of taking a break – hearing from unpaid carers in Northumberland
Summary
We asked carers about their experiences of taking breaks from their caring role and what had worked well and not so well. We also wanted to find out what would help them take more breaks and what the impact would be if they were able to take more breaks.
We heard that many carers had not taken breaks, particularly longer ones, in the past 12 months. Those who had taken breaks largely relied on family or friends to provide alternative care for their loved ones. Most who did not take breaks had either not tried to access a break or said their loved one did not like others caring for them. However, many carers also said they were unaware of the options available to them in getting help to take breaks from their caring role.
Some carers had no options to take breaks if they had no family support or alternative options for their loved ones being cared for by someone else and many felt guilt, stress or worry in taking breaks and leaving their loved ones. However, carers told us that taking more breaks would positively impact their mental health and wellbeing and we heard a strong message around the impact of caring on mental health.
Fewer numbers of carers had used formal respite services but those that had told us of difficulties in accessing suitable care due to costs, inability to pre-book or services being unable to meet their loved ones needs.
Key findings
- A third of carers were unable to regularly enjoy activities for themselves such as socialising or hobbies
- 45% of carers responding had not taken a short break from caring in the past
12 months - 76% of carers responding had not taken a longer break from caring in the past
12 months - 70% of carers relied on family or friends to enable them to take longer breaks
and 53% for shorter breaks - Of those who had not taken breaks in the past 12 months 33% stated they were unaware of the options available to them to take a break from their caring role
- 64% of carers responding would like more opportunities to take a break from
their caring role - Those struggling the most to take longer breaks were arguably those in the greatest need; carers who provide care for over 81 hours each week
Recommendations
- Work with the local carers forum and Carers Partnership Board to identify the wide range of respite options available to carers
- Ensure information about respite and how carers can access breaks from caring is readily available on Northumberland County Council website and as hard copies. This should be available to both people who fund their own care and those in receipt of care via Northumberland County Council Adult Social Care.
- Ensure transparency on costs of ‘respite’ services and promote, where possible, low cost and free services
- Carers assessments: Prioritise the importance of taking breaks during carers assessments and with those being cared for. Where possible, conduct carers assessments separately for those that they are providing care for to allow
more open and honest discussion - Use existing good practice resources to help support carers to take breaks: Carers Trust Time Away From Caring: Good Practice in Carer Breaks
Read more in Taking a break: hearing from carers in Northumberland.
Your feedback April 2026
Your NHS and social care feedback April 2026
Top issues
There were many different issues we heard about this month but no real common themes other than quality of care and communication issues with hospital outpatients services.
This month’s focus
We held Here to Hear sessions around the county including at Hexham General Hospital, Morpeth Library, Blyth Hub, Newbiggin Sports and Community Hub and in Alnwick.
We also attended sessions hosted by other groups including Karbon Homes Silver Friends event in Haltwhistle, Amble’s Cancer Support Group, Supporting Our Farming Community session at Hexham Auction Mart and Ponteland Aging Well Group.
Positive feedback example
We heard feedback from a member of the public who feels access at their GP surgery is improving slowly. The online system is much better since it changed from Anima to SystmConnect – forms are not as long or as complicated. However, they told us they still know of many patients who cannot use online systems.
North Northumberland resident
Negative feedback example
A visitor to one of our Here to Hear drop-ins told us they have several long-term conditions and get frustrated with poor communication from NHS services particularly in text messages.
For example, they will receive texts about appointments which fail to give information as to what condition it is for. They gave example of Cora health – physiotherapy service. They have had care for their shoulder and knee separately from this service. Texts were about appointments and also to give feedback but did not specify for which condition, so they had to contact the service to ask for clarification.
North Northumberland resident
Impact
“I am so impressed by the level of support I received from Healthwatch Northumberland. They really went the extra mile to find out what options were available to me with regards to receiving an alternative Covid vaccination because of the impact the Moderna vaccine has on my rheumatoid arthritis condition. It was a complex situation and they got to the bottom of it with the result that I now have an appointment in the next couple of days. Many thanks!”
Resident who used our Information and Signposting Service.
Information and Signposting Service
We were able to help people find the information they need on a range of issues and services, including scams awareness, mental health support, urgent dental care, prostate cancer testing and vision loss support.
Read more in our feedback summary for April 2026
ADHD assessment and Right to Choose
Healthwatch County Durham has created a useful guide about waiting for an ADHD assessment and Right to Choose.
Since 2019 demand across NHS England for ADHD and Autism assessments has increased. NHS services have not been able to expand at the same pace as the demand which means more people are on the waiting list and expected to wait longer for an assessment. To help reduce waiting times in the North East and North Cumbria, there are additional providers commissioned by the Integrated Care Board (ICB) to carry out ADHD assessments.
What is Right to Choose?
In England, when an NHS patient is referred by their GP to a specialist for a physical or mental health condition, they will usually have the option to choose which hospital or specialist service they attend, including services that assess ADHD. This is known as the Right to Choose, (quite often referred to as RtC) although it only applies when certain criteria are met.
Find out more in the guide below.
Here to Hear – at our monthly drop-ins
Healthwatch Northumberland Monthly Drop-ins
Come and see us at one of our monthly drop-ins, which we hold in all five local council areas of the county. These sessions are a chance for you to tell us, in confidence, about your experiences of NHS and social care services so that we can understand what is working well and what could be improved. You can also use our Information and Signposting Service to find out more about local support and services. Call in to speak to our friendly team at one of the venues below, or if you’d prefer to make a specific appointment for one of the sessions, please get in touch.
- Seahouses Hub, Seahouses, NE68 7YL: Thursday 4 June, 10am – 12pm.
- Allendale Village Hall, Leadgate, Allendale, NE47 9PR: Wednesday 10 June, 11.30am – 1pm.
- Asda, Lintonville Terrace, Portland Park, Ashington, NE63 9XG: Thursday 11 June, 11am-1pm
- Amble Quayside, Harbour Road, Amble, NE65 OAP: Thursday 18 June, 10am – 3pm.
- Hexham General Hospital, Corbridge Road, Hexham, NE46 1QJ: Thursday 18 June, 10.30am – 12.30pm.
- Hexham Mart, Tyne Green, Hexham, NE46 3SG: Friday 19 June, 9am to 1pm.
- Morpeth Leisure Centre, Gas House Lane, NE61 1SR: Fourth Wednesday of the month, next date 24 June, 10.30am – 12.30pm.
- Free online information session: Second Friday of the month, 1.00pm – 2.00pm. There will be a different topic each month – see our online events page or social media for details.
We also attend one-off events throughout the county. Please check our events calendar or social media for more details.
You can leave feedback at any time here on our website
Free online event – cancer support
Grab a cuppa and join us for a free online talk on Friday 8 May at 1pm with Ben Elliott from Live Well with Cancer. This North East charity helps people affected by a cancer diagnosis to improve their health and wellbeing.
We will hear about the support on offer from the charity to those living in Northumberland alongside an overview of their campaign, Live Well with Healthy Habits, helping anyone impacted by cancer or a chronic condition to improve their wellbeing.
The campaign promotes the nine habits of a healthy lifestyle including mental health, physical fitness, emotional wellbeing and relationships with others, yourself and your diet.
Register today to find out how you can transform your wellbeing or help others to live well with healthy habits.
This talk is suitable for both professionals and the public and there will be an opportunity to ask questions after the talk.
This event has now passed.
Sign up to our newsletter to hear about future events or catch up with previous events on our online events page.
Your feedback on new NHS services
Last year, working with other local Healthwatch across the region, we asked for your views on three NHS services designed to help people access care more quickly and conveniently. These were:
- The NHS App
- GP extended access (out of hours appointments)
- The Pharmacy First Service
Key findings
People across our region are using a growing number of ways to get help from primary care services, including the NHS App, Pharmacy First, GP practices and evening and weekend extended access (out of hours) appointments. Many people told us they appreciate having more choice, and 59% said they found it easy to access their GP. However, experiences vary, and some people continue to face long waits, uncertainty and confusion. Awareness of newer services is still developing. For example, 80% of people who had recently contacted their GP said they were not offered an extended access appointment, and 41% told us they have never used this option. Awareness of the Pharmacy First Service also varies, with 32% saying they haven’t used it and 7% unsure what it offers.
Digital tools can help, and people who use the NHS App value quick access to prescriptions and results. But 21% told us they do not use the App, with some saying technology, confidence or device limitations make it difficult. This report brings together what people told Healthwatch teams across the North East and North Cumbria during community visits, conversations and through the online survey. It highlights what is working well, where people still struggle, and what could make accessing GP care clearer and less stressful for people.
What people told us
Awareness varies, and face‑to‑face explanations really help
Many people heard about Pharmacy First and Extended Access for the first time through Healthwatch. Some had used these services, but many were still unsure what they offered or whether they were eligible.
Talking through the leaflet with someone in person made a clear difference in helping people understand their options.
People value the NHS App, but not everyone can use it
- Those who could access the NHS App often praised it for:
- Ordering prescriptions
- Checking test results
- Receiving appointment reminders
But for others, using the App wasn’t straightforward. People told us about difficulties with:
- ID verification
- Old devices that don’t support the App
- Not knowing how to get started
- Practices switching on different features
For some, particularly older people and disabled people, digital routes simply aren’t an option. This reinforced the need for clear non‑digital choices.
Access to GP appointments is still the biggest challenge
This was the strongest theme across all areas. People shared concerns about:
- Busy phone lines and long waits
- The ‘8am race’ for appointments
- Online forms being confusing or inaccessible
- Not being offered extended access even when it was available
- A lack of continuity, especially for those with complex or long‑term conditions
While many people did share positive experiences, these were often when services were working exactly as intended, and when they could speak to the right person at the right time.
Disabled people and those needing communication support face added barriers
Some people told us they could not access services in a way that worked for them.
This included:
- Deaf people being told to ‘call back later’
- No interpreters being available
- People with learning disabilities struggling with online forms
- People with sensory needs finding digital systems overwhelming
- Those without internet access feeling left behind
This feedback has strengthened the recommendation for accessible information from day one.
Recommendations
1. Make it clearer which service people should use and when
People told us they often feel unsure whether to use the NHS App, Pharmacy First, their GP practice or extended access. We recommend clearer, more consistent information across all GP websites, phone messages, leaflets and community settings. Messages should be simple, co‑branded and available in Easy Read, BSL, translated and printed formats.
2. Improve how people are offered and informed about extended access
Extended access appointments are helpful but not routinely offered, and many people don’t know they exist. We recommend that practices explain extended access at every contact and publish offer rates across practices/Primary care Networks so people know it’s available. Staff should be supported to describe all appointment options clearly and confidently.
3. Support people who struggle with digital tools and keep non‑digital options easy to use
The NHS App works very well for some people, but others find it difficult or cannot use digital tools at all. We recommend offering simple in‑person guidance, drop‑in support and clear alternatives like telephone and face‑to‑face options. Practices should enable a consistent minimum set of NHS App features so people have the same experience wherever they live.
4. Make information from different services more joined‑up and consistent
People sometimes receive different or confusing messages depending on where they ask for help. We recommend coordinated, simple communication across GP practices, pharmacies, NHS App information, reception teams and wider services so people know what to expect and where to go first.
5. Improve how people can contact their GP practice, especially at busy times
The biggest pressure point remains getting through on the phone. We recommend clearer information about the best times to call, how call‑backs work, online/phone alternatives when lines are busy, and exploring whole‑day triage or queue systems to reduce the ‘8am race’. Transparency around appointment release times will help people plan.
6. Remove barriers for people who face the biggest challenges accessing care
Disabled people, Deaf people, carers, older adults, and people with limited English or digital confidence face the most barriers. We recommend making the Accessible Information Standard a routine requirement: interpreters, translation, BSL support, accessible booking routes and non‑digital choices should be available from day one, with monitoring shared with the North East and north Cumbria Integrated Care Board.
7. Protect access to face‑to‑face appointments and continuity for those who need it most
Many people still prefer face‑to‑face appointments, especially for complex or sensitive issues. We recommend keeping in‑person options visible and easy to request, and making it easier for people with long‑term or complex conditionsto see the same clinician where possible.
8. Build on what already works well and keep investing in community engagement
People have better experiences when information is clear, staff take time to explain options, and services work smoothly together. We recommend continuing to invest in face‑to‑face outreach through
Healthwatch and voluntary and community partners, particularly for people who are least likely to use digital routes. Sharing good practice across the system will help ensure positive experiences become the norm.
8. Ensure that reception teams proactively explain all available options when people present in person
This includes Extended Access, Pharmacy First, urgent care pathways, and call‑back systems, so that attending the practice physically does not result in being turned away without clear next steps.
The Integrated Care Board has now taken these recommendations forward. Our findings have been commended by the Quality and Safety Committee, will feature in GP bulletins, and are being used to inform planning through the March Primary Care Sub‑Committee.
Thank you to everyone who spoke to us. Your voice is already influencing change across services.
Read the Healthwatch Modern Access to General Practice report
Share your views on hospital radio
Northumberland Hospital Radio wants to hear your views on background music in hospital waiting areas.
If you are a patient, carer, volunteer or member of staff at hospitals across Northumberland and North Tyneside, your thoughts would be appreciated.
Northumberland Hospital Radio provides music 24 hours a day, plus hourly national news, local news, interviews with NHS staff, topical health information and public service announcements.
Your feedback March 2026
Your NHS and social care feedback March 2026
Top issues
This month we heard about issues with hospital outpatients appointments including insufficient parking and poor communication. We also received feedback about difficulties accessing audiology services and GP appointments.
This month’s focus
This month we presented our first Stellar Award to the Hyperacute Stroke Unit team at Northumbria Specialist Emergency Care Hospital.
Our Stellar Awards celebrate the people and services who go the extra mile to provide positive health and social care experiences for people across Northumberland
We held our regular Here to Hear drop in sessions at Bedlington, Alnwick, Ashington, Morpeth and at Hexham General Hospital.
We also attended some additional face-to-face sessions at Northumberland County of Sanctuary in Ashington, the Meet and Eat session in Allendale, Hadston House, and Hexham Livestock Mart.
Throughout the month we promoted our Annual Survey and aim to publish the findings by the end of April.
This month’s online talk was from Autism in Mind which covered the support available for autistic adults. This was a very popular event, attracting our largest audience for 2025-26.
Positive feedback example
A woman and her husband came to our Hexham Here to Hear drop-in session to tell us that she had been in Haltwhistle hospital for ten days. She was very happy with the care she had experienced. The staff were very friendly and supportive and nothing was too much bother for them. Excellent service!
Tynedale resident
Negative feedback example
Discussion with member of the public who is an NHS hearing aid user. States that they are having long waits for appointments to get hearing aids tuned. Has not struggled so much with getting parts but appointments for tuning more of a problem and it can be a struggle with hearing properly in the meantime.
North Northumberland resident
Impact
We were recognised for our contribution to Northumberland County Council Director of Public Health’s annual report: “I would like to thank Public Health team members for their individual contributions and Healthwatch Northumberland for their valuable input into understanding healthcare access.”
Information and Signposting Service
We were able to help people find the information they need on a range of issues and services, including local hearing aid support clinics, sight loss support groups, hidden disability lanyards and homeless support.