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Share your experiences at our Online Forums

As we will be unable to get out and about across the county to meet with and listen to people for a while, we’re holding some public online forums, and we’d like you to join us. All forums take place from 2.00pm – 3.00pm.

If you are unable to take part but would like to tell us about your experiences of these services, members of the team will be available by phone, text and email (see below) each Wednesday after the forums to listen, answer any questions and help with providing information about services.

The forums will take place via Zoom. Read our guide on how to use Zoom. If you would like help to set up Zoom on your device please ask.

 

Online Forums – all take place between 2.00pm and 3.00pm

Wednesday 20 May: Dementia Services

Wednesday 27 May: Adult Social Services (to include support to live independently, care homes, learning disability services)

 

Wednesday 3 June: Mental Health Services

Wednesday 10 June: Special Educational Needs and Disabilities

Wednesday 17 June: Maternity Services

 

Wednesday 1 July: Mental Health Services

Wednesday 8 July: NHS, Health and Social Care Services – any service you’ve used in the last 12 months

Wednesday 15 July: Unpaid Carers and Mental Health Services

 

Wednesday 12 August: Cancer Services

 

Wednesday 9 September: Children and Young People’s Services. Are you a voluntary or community organisation working with young people? If so, we’d like you to join us for an open discussion on children and young peoples services, particularly around mental health services.

 

Wednesday 18 November:  Dementia Services

 

If you would like to take part in a forum please contact Laura Kane, laurak@healthwatchnorthumberland.co.uk, or call 03332 408468. We can also help you set up Zoom on your device so please get in touch if you would like some guidance.

Cancer Information Events

Cancer Information Events Northumberland

The Northumbria Cancer Patient and Carer Group is holding a series of events across Northumberland, where you can share your ideas and experiences as a patient or carer of someone with cancer. There will also be a mix of organisations with information stalls offering advice and support. All the events start at 10.00am with lunch at 12.00pm.

 

Monday 3 February: The Roundhouse, Ashington NE63 9JZ

Wednesday 19 February: Seaton Delaval Community Centre NE25 0BW

Wednesday 4 March: Morpeth Town Hall NE61 1LZ

Wednesday 11 March: United Reformed Church, Market Place, Rothbury NE65 7UW

Thursday 26 March: Hexham Mart, Tyne Green Hexham NE46 3SG

 

There’s no need to book but if you have any queries about the events please email: info@ncpcg.org or call: 07817 515265.

These events are supported by the Northern Cancer Alliance and working with Northumbria Healthcare NHS Foundation Trust and the Empowering Communities Project team at Northumberland County Council.

 

 

Wild daisies

Northumberland Cancer Support Group 2019

Northumberland Cancer Support Group is a volunteer run self-help organisation which helps anyone affected by cancer. the group meets on the first and fourth Tuesday of each month in Hexham. The programme of events for this year can be found below, or visit the website for more details.

First Tuesday of the month (7.00pm, Education Centre, Hexham Hospital)

5 March: Professor John McCabe “Japan Behind the Fan”

2 April: Tom MuCullough “Medication Made Easy”

4 June: David Belcher “Cancer … What’s it all about?”

2 July: Fenwick Mark Ridley “Wild Swimming”

6 August: Pauline Walks “Past, Present and Future of The Theatre Royal”

3 September: Nicola Cunningham “Nutrition and Cancer”

1 October: Sam Jones “Relaxation and the Nervous System”

5 November: Helene Dolder “Laughter is the Best Medicine”

3 December: Christmas Makes

 

Fourth Tuesday of the month (1.00pm, Trinity Methodist Church Hall, Hexham)

22 January: Fenwick Mark Ridley “Wild Swimming”

27 February: Liz Weir “How Complementary Therapies Helped Me”

26 March: “Lorraine Henderson “Ageing Well”

23 April: “Tracy Pringle “Laughter and Chakra for Wellbeing”

24 September: Janette Frank “PALS”

26 November: Sparkle Afternoon

 

Ideas and Information Board

Easy Read Co-design Workshop

The Macmillan Cancer Project aims to make cancer services and experiences better for people with a learning disability. They are working with Public Health England to design easy read materials for cancer screening.

They are running two workshops for people with a learning disability, families and carers. The morning workshop will look at cervical screening; the afternoon workshop will look at bowel screening.

The cervical screening workshop is in the morning. This is for women.  It is 10:00am to 12:30pm, followed by lunch at 12:30pm to 1:15pm.The bowel screening workshop is in the afternoon. This is for men and women. Lunch is served 12:30pm to 1:15pm and is followed by the workshop at 1:15pm to 3:45pm.

The workshop takes place on Friday 8 February at:

Waterfront 4,

Goldcrest Way,

Newcastle upon Tyne.

NE15 8NY

To book a place please complete the booking form and return to Julie Tucker.

For more information please contact: Julie Tucker. Email: Julie.tucker11@nhs.net. Call: 0113 824 9693 or 0786 017 7981.

NCV logo

Northern Cancer Voices

Northern Cancer Voices – Involving patients in shaping NHS cancer services.

Northern Cancer Voices is a NHS led project that is funded by Macmillan. This project involves patients, carers and professionals working together to improve cancer outcomes in the Northern Region. The purpose of this project is to develop a plan that will provide patients, carers and families with opportunities to share their experiences of cancer care and treatment. The plan will also identify ways in which people can work in partnership with health professionals to shape NHS cancer services in our region.

To help develop this plan, Northern Cancer Voices are currently speaking to people in our region to understand their views on how best to create these opportunities to get involved.

Your views and comments on this topic would be welcomed and you are invited to complete a short survey.

To learn more about the project, please read the first edition of the project bulletin here.

If you have any questions about the survey or would like to know more about current opportunities to get involved in a project related to ‘Living with Cancer and Beyond’ please contact Jo Mackintosh at Joannemackintosh@nhs.net or telephone 07730379671 /01138257313.

The survey will close on Monday 14th May 2018.

Lady with headscarf talking to a doctor

You asked us about Cold Caps

Healthwatch Northumberland was contacted by someone who reported that cold cap hadn’t been available for them during cancer treatment at Hexham General Hospital. The cold cap is a special cap filled with cold gel that can reduce hair loss caused by chemotherapy. It works by reducing the amount of chemotherapy drugs reaching the hair follicles.

We contacted some local groups for more information and were invited to attend a coffee morning held by the Northumberland Cancer Support Group. The people we spoke to seemed sure there is in fact a cold cap available at Hexham Hospital. Some people told us that they were offered the cold cap treatment but declined because of potential drawbacks and limited success rates;  others told us that because of the type of cancer and its severity, they had not been eligible for this type of treatment.

We also met a volunteer with Macmillan Cancer Support at the coffee morning, who agreed to ask some questions when she was next at the hospital.  The volunteer got back in touch with the following information:

“Hexham Oncology Day Unit has two cold caps.  These are offered to patients and are readily available as appointments can be made to accommodate everyone.  Usually the patient’s consultant would have discussed the situation with them beforehand.”

“Everyone is eligible but the consultant may be of the opinion that the patient could be at risk of metastasis to the brain if taking a certain drug during treatment.”

Healthwatch Northumberland also spoke to the staff on the Macmillan Cancer Support bus which was visiting Hexham at the time.  They suggested two useful websites for further information on hair loss during treatment:

 

Breast Cancer Care

Macmillan Cancer Support

 

Further research concluded that it is the decision of the individual cancer specialist whether or not the cold cap is suitable for a patient.  Cold cap treatment is not available for use during radiotherapy.  It can be used with chemotherapy but if the chemotherapy treatment is very strong or if the patient has very long periods of chemotherapy treatment, the cold cap will not be suitable.  In short, the severity of the cancer and the strength of the treatment will determine whether the cold cap is recommended.

Macmillan cancer support mug

New Macmillan Drop In Service for Berwick

New support sessions for people affected by cancer and life limiting illnesses are to take place in Berwick. These free sessions provide emotional support and a range of information on treatments, lifestyle, nutrition, benefits plus local support groups and events.

The support is offered by the Northumberland Macmillan Support Service, which is provided by Northumbria Healthcare NHS Foundation Trust with funding from Macmillan Cancer Support.

Northumbria Healthcare’s Macmillan Support Services lead Lisa Johnstone says: “The new support sessions in Berwick build on the success of drop-ins we already run in Ashington and North Tyneside. The Macmillan Support Service is available for anyone aged over 18 in Northumberland and North Tyneside. The service provides access to information and support for adults affected by cancer or other serious illnesses, and their families and carers.”

Sessions are on the first Thursday of the month,10am to 1pm at North Northumberland Voluntary Forum, Tweed Street, Berwick, starting on Thursday 3rd August. No appointment is needed.

Contact Macmillan Support Services Northumberland on: 01670 855533 or email macmillan.supportnorthumberland@northumbria-healthcare.nhs.uk for more details.

Events

Cancer Patient Event: Rothbury

Cancer Information and Engagement Northumberland

The Northumbria Cancer Patient and Carer Group would like to invite cancer patients and carers in Northumberland to share their experiences and ideas – what is working well in your area? What needs improving? There will also be a mix of organisations at the event offering advice and support.

The Northumbria Cancer Patient and Carer Group is made up of patients, carers, health professionals, voluntary group representatives and others affected by cancer. It’s objective is to improve cancer services and support throughout Northumberland and North Tyneside. The group is supported by Northumbria Healthcare NHS Foundation Trust which consults with the group to gain opinions on new service developments, information leaflets and questionnaires.  The Northumbria Cancer Patient and Carer Group is not a cancer support group, but it does have very good links with local support groups and can put you in touch with the right people.

 

This event starts at 10.00am with refreshments, and lunch will be available from 12.00pm.

You can also visit an event at these locations in Northumberland:

Monday 3 February: The Roundhouse, Ashington 

Wednesday 19 February: Seaton Delaval Community Centre

Wednesday 4 March: Morpeth Town Hall

Thursday 26 March: Hexham Mart

 

No booking required. For more information about the events or how to give your feedback if you can’t get to one of the events, email: info@ncpcg.org.

Cancer Patient Event: Morpeth

Cancer Information and Engagement Northumberland

The Northumbria Cancer Patient and Carer Group would like to invite cancer patients and carers in Northumberland to share their experiences and ideas – what is working well in your area? What needs improving? There will also be a mix of organisations at the event offering advice and support.

The Northumbria Cancer Patient and Carer Group is made up of patients, carers, health professionals, voluntary group representatives and others affected by cancer. It’s objective is to improve cancer services and support throughout Northumberland and North Tyneside. The group is supported by Northumbria Healthcare NHS Foundation Trust which consults with the group to gain opinions on new service developments, information leaflets and questionnaires.  The Northumbria Cancer Patient and Carer Group is not a cancer support group, but it does have very good links with local support groups and can put you in touch with the right people.

 

This event starts at 10.00am with refreshments, and lunch will be available from 12.00pm.

You can also visit an event at these locations in Northumberland:

Monday 3 February: The Roundhouse, Ashington 

Wednesday 19 February: Seaton Delaval Community Centre

Wednesday 11 March: URC, Rothbury

Thursday 26 March: Hexham Mart

 

No booking required. For more information about the events or how to give your feedback if you can’t get to one of the events, email: info@ncpcg.org.

Cancer Patient Event: Seaton Delaval

Cancer Information and Engagement Northumberland

The Northumbria Cancer Patient and Carer Group would like to invite cancer patients and carers in Northumberland to share their experiences and ideas – what is working well in your area? What needs improving? There will also be a mix of organisations at the event offering advice and support.

The Northumbria Cancer Patient and Carer Group is made up of patients, carers, health professionals, voluntary group representatives and others affected by cancer. It’s objective is to improve cancer services and support throughout Northumberland and North Tyneside. The group is supported by Northumbria Healthcare NHS Foundation Trust which consults with the group to gain opinions on new service developments, information leaflets and questionnaires.  The Northumbria Cancer Patient and Carer Group is not a cancer support group, but it does have very good links with local support groups and can put you in touch with the right people.

We will be there asking you about your care experiences from 2019 for our Annual Survey 2020. Your feedback will help us work more effectively on your behalf and can help make improvements for everyone.

This event starts at 10.00am with refreshments, and lunch will be available from 12.00pm.

You can also visit an event at these locations in Northumberland:

Monday 3 February: The Roundhouse, Ashington 

Wednesday 4 March: Morpeth Town Hall

Wednesday 11 March: URC, Rothbury

Thursday 26 March: Hexham Mart

 

No booking required. For more information about the events or how to give your feedback if you can’t get to one of the events, email: info@ncpcg.org.

Cancer Patient Event: Ashington

Cancer Information and Engagement Northumberland

The Northumbria Cancer Patient and Carer Group would like to invite cancer patients and carers in Northumberland to share their experiences and ideas – what is working well in your area? What needs improving? There will also be a mix of organisations at the event offering advice and support.

The Northumbria Cancer Patient and Carer Group is made up of patients, carers, health professionals, voluntary group representatives and others affected by cancer. It’s objective is to improve cancer services and support throughout Northumberland and North Tyneside. The group is supported by Northumbria Healthcare NHS Foundation Trust which consults with the group to gain opinions on new service developments, information leaflets and questionnaires.  The Northumbria Cancer Patient and Carer Group is not a cancer support group, but it does have very good links with local support groups and can put you in touch with the right people.

 

This event starts at 10.00am with refreshments, and lunch will be available from 12.00pm. The Healthwatch Northumberland team will be there with an information stand and will be inviting you to tell them about your care experiences over the last 12 months.

You can also visit an event at these locations in Northumberland:

Wednesday 19 February: Seaton Delaval Community Centre

Wednesday 4 March: Morpeth Town Hall

Wednesday 11 March: URC, Rothbury

Thursday 26 March: Hexham Mart

 

No booking required. For more information about the events or how to give your feedback if you can’t get to one of the events, email: info@ncpcg.org.

Cancer Awareness Roadshow Hexham Abbey

Cancer Research UK Cancer Awareness Roadshow will be visiting Hexham later this month.

The roadshow will be at the following venues:

 

Tuesday 20 August 2019:  10.00am to 4.00pm,  Hexham Market Place

Wednesday 21 August 2019: 10.00am to 4.00pm, Hexham Abbey

    

What is the Cancer Awareness Roadshow?

Cancer Research UK’s Cancer Awareness Roadshow first hit the road in 2006 and was set up in partnership with Ronan Keating and the Marie Keating Foundation, who continue to support the Roadshow today.

 

The roadshow travels to different towns each week to:

  • Help visitors to take steps to reduce their risk of cancer through lifestyle changes
  • Encourage people to go to their GP with any concerns – picking cancer up at an earlier stage means treatment is more likely to be successful.
  • Promote local screening programmes

Click here for more information about the Cancer Awareness Roadshow.

Cancer Awareness Roadshow Hexham Market Place

Cancer Research UK Cancer Awareness Roadshow will be visiting Hexham later this month.

The roadshow will be at the following venues:

 

Tuesday 20 August 2019:  10.00am to 4.00pm,  Hexham Market Place

Wednesday 21 August 2019: 10.00am to 4.00pm, Hexham Abbey

    

What is the Cancer Awareness Roadshow?

Cancer Research UK’s Cancer Awareness Roadshow first hit the road in 2006 and was set up in partnership with Ronan Keating and the Marie Keating Foundation, who continue to support the Roadshow today.

 

The roadshow travels to different towns each week to:

  • Help visitors to take steps to reduce their risk of cancer through lifestyle changes
  • Encourage people to go to their GP with any concerns – picking cancer up at an earlier stage means treatment is more likely to be successful.
  • Promote local screening programmes

Click here for more information about the Cancer Awareness Roadshow.

Ideas and Information Board

Easy Read Co-design Workshop

The Macmillan Cancer Project aims to make cancer services and experiences better for people with a learning disability. They are working with Public Health England to design easy read materials for cancer screening.

They are running two workshops for people with a learning disability, families and carers. The morning workshop will look at cervical screening; the afternoon workshop will look at bowel screening.

The cervical screening workshop is in the morning. This is for women.  It is 10:00am to 12:30pm, followed by lunch at 12:30pm to 1:15pm.

The bowel screening workshop is in the afternoon. This is for men and women. Lunch is served 12:30pm to 1:15pm and is followed by the workshop at 1:15pm to 3:45pm.

To book a place please complete the booking form and return to Julie Tucker.

For more information please contact: Julie Tucker: Julie.tucker11@nhs.net. Call: 0113 824 9693 or 0786 017 7981.

Living with and Beyond Cancer

Living with and Beyond Cancer Event

Northumbria NHS Healthcare Foundation Trust runs regular health and wellbeing events for people with a cancer diagnosis.  They are an opportunity to get lots of advice and support to help you make choices that improve your wellbeing.

Many well-established local organisations are on hand to provide advice on a wide variety of topics and you can discover what facilities and services are available on our doorstep. The events cover topics such as:

  • Diet, exercise and general wellbeing including improving your mental wellbeing
  • Cancer awareness and managing  your symptoms
  • Volunteering and practical hobbies such as IT, gardening, photography and joinery
  • Financial advice and help with getting back to work
  • Support for carers
If you’d like to come along get in touch at

Women talking at a public event

Living With and Beyond Cancer Community Event

The Living With and Beyond Cancer team are organising a health and wellbeing event at East Bedlington Community Centre. This is open to anyone who has had a cancer diagnosis (current or previous) and lives in the Northumberland area. You can also book an additional place for a friend, family member or carer. Your guest can attend sessions or enjoy a break in the on-site coffee shop.

The day will include the opportunity to find out what’s on in your local area, including groups, services and activities as well as the chance to try some of our fun, practical sessions for happiness and health.

Practical sessions (lasting 30 minutes to an hour) at the event include:

Men’s Sheds and Outdoor Projects – your chance to learn more about woodland walking, outdoor adventuring, wood carving using a shave horse, allotment projects and the local Men’s Sheds projects.

Talking Matters Northumberlandneed a little help on how to get a good night’s sleep? Would you like to learn how to feel calmer or lift your mood? This session is packed full of top tips from the experts. A session guaranteed to get you feeling good.

FACT (Fighting All Cancers Together) – FACT is a North East based charity which has new bases in Bedlington and Whitley Bay. The heart of the work they do is to strengthen the network of support available in the area, and to make it easier to access support at a time when people least feel like looking for help. FACT offer direct support to those diagnosed with cancer, their family, carers and friends.  They offer regular help, support and social opportunities for people going through the cancer journey.

Health Trainer Service – Bursting with nutritional goodness, this session is perfect for you if you’d like to learn more about making healthy lifestyle changes in a fun way. This session will talk you through how to make small changes that will improve your health and wellbeing and link you in with local activities. Our very own healthy lifestyle team will be ready to serve you up the very best knowledge on how to make healthy changes using tried and tested methods.

There will also be an opportunity to wander around our stalls and chat to organisations such as The Northumbria Cancer Patient and Carer Group, Northumberland Clinical Commissioning Group, Support Planners, Family Gateway, Active Northumberland, Age UK Northumberland and many more. There will also be a number of Cancer Nurses Specialists’ available to chat to on the day.

Free parking is available and refreshments will be available during the day, including a lunchtime buffet.

Places can be booked via the following ways:

Demand is expected to be high and will be allocated on a first-come-first served basis.

For more detailed information, please contact The Northumberland Living With and Beyond Team 01670 623863 or email LivingWithAndBeyondCancer@nhct.nhs.uk

 

 

Northumbria Cancer Patient and Carer Group

Northumbria Cancer Patient and Carer Group meeting

The Northumbria Cancer Patient and Carer Group would like your help to make cancer services for patients and carers in Northumberland and North Tyneside better. Come and help to get the patient voice heard and make a real difference.

Meetings are held every four to six weeks at Wansbeck, Hexham or North Tyneside general hospitals. The group aims to:

• represent patient and carer views
• work with other organisations
• liaise with health professionals
• talk with local cancer support groups
• carry out five senses surveys from a patient carer perspective on areas used by cancer patients during their cancer journey
• represent the cancer patient voice across Northumberland and North Tyneside
• suggest ways of improving services
• review the patient comments given on the national patient survey and take forward any items where we feel we can help make an improvement.

The next Northumbria Cancer Patient and Carer Support Group meeting takes place on Tuesday 9 January at Wansbeck General Hospital. For further information contact Chris Walker on 07817515265 or email ncpcg@ciani.plus.com.

Read the Northumbria Cancer Patient and Carer Group Information Leaflet