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Parkinson's UK Research Interest Group

Parkinson’s Research Interest Group

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Newcastle University is working with Parkinson’s UK to develop a North East and Cumbria Parkinson’s Research Interest Group (NEC-RIG). They have designed a survey to get the opinions of people with an interest in Parkinson’s research about what this group might look like and how it might work.

The aim of the group is to bring people who have an interest in Parkinson’s research together to provide opportunities to take part in all stages of research. This can include helping researchers in universities and/or the NHS to identify important questions or issues to people with Parkinson’s, designing research studies that will help people who want to take part or identifying what the best ways are to tell people about the results.

To complete the survey or find out more, click the link below.

North East and Cumbria Parkinson’s Research Interest Group Survey

For more information contact Rachael Lawson: rachael.lawson@ncl.ac.uk or Rosie Morris: rosie.e.morris@northumbria.ac.uk.

Parkinson’s Power

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The Parkinson’s Power Project is working with people with Parkinson’s aged 55+ who are currently physically inactive (not achieving at least 30 minutes of moderate intensity activity a week). The project works on a one-to-one basis to support people to overcome the barriers that are preventing them from getting active, helps them to identify an activity they would enjoy and supports them to take the first steps towards leading a more active lifestyle.

Research suggests that leading an active lifestyle can have a beneficial effect on the lives of people living with Parkinson’s. Being physically active can help people to manage the physical and psychological symptoms of their condition, including supporting them to manage tremors and improving core strength and mobility, as well as contributing to positive mental wellbeing.

Parkinson’s UK wants to work with local partners and professionals who are trusted voices and can identify people who will benefit the project; especially those in communities which are diverse, socially isolated or marginalised.

Parkinson’s Power is:
• a two year pilot project (2019-2021) funded by Sport England in the North East of England
• for people diagnosed with any stage of Parkinson’s
• for people aged 55 and over and inactive (not achieving at least 30 minutes of moderate exercise a week)

Physical activity includes things such as walking, swimming, gardening, seated exercise, exercise classes

If you or someone you know could benefit from Parkinson’s Power, please contact Jasmine Danby on: 07975 947879 or email: parkinsonspower@parkinsons.org.uk

Events

Parkinson's UK

Online Event – Parkinson’s UK

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At this free online public event we will hear from Alastair Jack from Parkinson’s UK.

Parkinson’s is the fastest growing neurological condition. Parkinson’s UK is the national charity, working locally, to provide support for those living with the condition and their family and friends. They are also a campaigning and research organisation.

Their senior area development manager, Alastair Jack, will give a brief overview of what Parkinson’s is, what it means to people living with the condition, how Parkinson’s UK supports those with the condition, influences health and social care services and works towards a cure.

The event is suitable for people who live or work in Northumberland and are interested in finding out more about this disease and what support there is locally.

There will also be a chance to ask questions.

Register now and we will send you a link to join closer to the event: bit.ly/ParkinsonsUK_event