Are people with dementia getting the right support?

To find out whether people are getting the right dementia support as their condition deteriorates, Healthwatch England reviewed:

  • What over 700 people said about their care
  • Data from 97 councils about whether people’s needs are being assessed and reviewed
Fewer than half of all people with dementia, who use social care, are getting the regular care reviews they are entitled to. Councils must ensure that these reviews are happening in a timely fashion, to meet the requirements of the Care Act 2014 and to make all care plans responsive to people’s changing needs.

Key Findings

  • People don’t always have a clear understanding of the support available to them and how to access care.
  • On average, people wait over two months between requesting support for dementia from the council, to that support being put in place. However by the time that people ask, they are at crisis point.
  • Once people have a care plan, only 45% are reviewed annually.
  • People with dementia are more likely to receive unplanned reviews triggered by an emergency or sudden event than general social care users.
  • 65% of people with dementia who had a review were referred for a full reassessment. However, half of these reassessments led to no change in the level of care and support.
  • One third of people with dementia, using long-term care services did not receive any review, whether planned or unplanned.