Stroke Service User Voice

Join the Stroke Service User Voice Group

Do you have experience of having a stroke or caring for someone after a stroke? The North East and North Cumbria Integrated Stroke Delivery Network (ISDN) is looking for people to help develop and improve stroke care in the region.

It is important that stroke survivors are actively involved in discussions and decisions about stroke care to ensure services meet the needs of the people who use them.

The recently formed Stroke Service User Voice Group (SSUV) aims to represent the views and experiences of stroke survivors and their carers. To ensure that all areas across the North East and North Cumbria are represented in this group, the ISDN is currently looking for people who live in North Northumberland (Alnwick, Wooler, Berwick upon Tweed, Seahouses or Amble) to join.

For more information please contact:

support group Berwick

New Support Group for Berwick

Without Limits began following a conversation between Janey Dixon, a registered paramedic and Lorna Chappell, a Link Worker. Having suffered two strokes Janey found that she could no longer work on the frontline and overnight life as she knew it was over. She was 52. What followed could only be understood by someone who has suffered a similar experience. In a thousand ways, life was harder and the reality of her situation and the process of adjustment took its toll on Janey. What shocked her the most perhaps, was the realisation that there was absolutely no provision, once the six weeks of support had ended, for people like her who had been through a catastrophic health event while still of working age.

In partnership with the GP Link Workers, RuralUs and the North Northumberland Voluntary Forum and with funding from the National Lottery Community Fund, Without Limits is ready to welcome new members. Based in Berwick but open to everyone from all over North Northumberland, and with the focus firmly on living life to its fullest, this new support group is open to 35-65 year olds following a life altering health event or diagnosis. There will be opportunities to link up via Zoom and chat on the phones initially. As soon as restrictions allow, the group will all be able to get together and enjoy walks, regular guest speakers, trips out for meals, social gatherings, music events and theatre nights, all chosen and planned by the members themselves. The group is also looking for volunteers who have experience of living with a life altering illness either through supporting others or personally.

If you or anyone you know may benefit from being part of Without Limits or would like more information call 0787 918 4693, email or visit the Facebook page.


Find details of other support groups and services across the region