Posts

Laptop and coffee cup with Epilepsy Action logo

Online event – Epilepsy Action

Join us for our next free online lunchtime event on Friday 10 February, 1pm-2pm, to hear from Simon Privett, Volunteer Coordinator for Epilepsy Action. Simon will talk to us about what epilepsy is, how it can present, tips to help manage it and how we can help others living with epilepsy.

We will also hear what support is available from the charity and there will be a chance to ask questions.

Register now and we will send you a link to join closer to the event: 

For more information about epilepsy or to find out more about Epilepsy Action visit the Epilepsy Action website.

This event has now passed

Laptop, coffee and ME Association logo

Online event – ME Association

Join us for our next free online event on Friday 13 January, 1pm-2pm, to hear from Russell Fleming, Communications Manager at ME Association. This is the rescheduled date for the cancelled event in December.

Russell has had ME/CFS for 22 years but in recent years has been able to return to work for the national charity.

The ME Association provides support and information to those affected, training and advice to health and social care professionals and funds medical research in the hope that one day there will be effective treatments and even a cure. It also provides advice and support around Long Covid due to its many similarities with ME.

We will hear an overview of ME and Long Covid, management techniques and support available nationally and locally. There will also be a chance to ask questions.

Register now and we will send you a link to join closer to the event: bit.ly/ME-Association-event-Jan-23

This event has now passed

Qwell

Online event – Qwell

Join us on Friday 11 November to hear from Andrew Poinen, Engagement Lead for Kooth and Qwell.

In this free, online public event Andrew will provide an overview of Qwell, the online service available for adults aged 18 and over in Northumberland which provides free, safe and anonymous mental health and wellbeing support.

We will hear what it involves, how to access it and there will be a chance to ask questions.

Register now and we will send you a link to join closer to the event: 

This event has now passed

Watch our Asthma+Lung UK online event

Thank you to everyone who came along to our online event with Nick Powell from Asthma+Lung UK on Friday 12 August.

Nick gave a presentation about the work of Asthma+Lung UK and the support available both nationally and locally for people living with asthma, COPD, mesothelioma and other lung conditions. There was also a chance to ask questions at the end.

If you didn’t get the chance to join the session you can watch the recording of the presentation below.

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Diabetes Week – 13-19 June 2022

Diabetes Week 2022 is coming up from 13 to 19 June. It’s a chance to raise awareness of diabetes and highlight the support available to anyone living with the condition. If you would like to find out more about diabetes and the support available in Northumberland, come along to our free online event on Friday 10 June to hear from Colin Renshaw of Diabetes UK.

Colin will provide information about the different types of diabetes and how to manage and live well with the condition. We will also hear about national and local support available from Diabetes UK and there will be a chance to ask questions.

Here at Healthwatch Northumberland, two members of our volunteer team have experience of type 2 diabetes and have kindly shared their thoughts below.

James’ Poem

Our volunteer James wrote a poem about his experience of type 2 diabetes:

Got diabetes
From eating too many sweeties
Didn’t care what I ate
Always cleared my plate

What symptoms did I have?
Lots of trips to the lav
Drank like a fish
Even made a wish

Was first given tablets
But didn’t change my habits
Drinking too much coca colas
Along the way I am rotting my molars

Moved on to the hard stuff
Needle is in
Needle is out
Whoops am going to shout

Sugars is o so high
Sugars is o so low
How is going to go
Or maybe it’s going to snow

Have now changed my diet
I can’t really be quiet
How low can I go
Getting a healthier glow

Colin’s Q&A

Volunteer Colin answered some questions for us about his experience of type 2 diabetes and how this affects his daily life:

When were you first diagnosed with diabetes?

22 years ago.

What symptoms did you have?

I didn’t have any symptoms, it was picked up during a routine eye examination following sight loss (unrelated).

How did it affect your life?

The main thing is that I have to check my blood twice a day.

How have you managed the condition? What healthcare support did you get? Did you get help from any support organisations?

My diabetes was initially treated with Metformin tablets and I had an annual check with a diabetes nurse. After a period of time I needed insulin to manage my sugar levels and I attended a course on how to use insulin at Blyth Hospital. I continue to have yearly check-ups with a diabetes nurse – these were online during pandemic but are back to in person now.

What is the situation now – how is the condition and have you made any lifestyle changes to improve it?

I have to have meals at regular times and carry something with me to eat. If things get out of balance, I can have a ‘hypo’ (experience hypoglycaemia) but I’m good at spotting the signs.

 

Find out more about diabetes at the Diabetes UK website.

If you would like to tell us about your experience of diabetes services or ask a question about local services and support, please get in touch.

Diabetes UK online event

Online Event – Diabetes UK

Join us in the run up to Diabetes Week 2022 to hear from Colin Renshaw from Diabetes UK on Friday 10 June, 1pm-2pm.

In this free, online public event Colin will provide information about the different types of diabetes and how to manage and live well with the condition. We will also hear about national and local support available from Diabetes UK. There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event: 

If you would like to tell us about your recent experience of diabetes services please get in touch.

Dementia activities

Free online event – Alzheimer’s Society

Join us on Friday 8 April for this free, online public event to hear from Helen Mayne who will provide a brief overview of Alzheimer’s Disease and the Alzheimer’s Society.

Dementia is a progressive neurological condition and the UK’s biggest killer. Alzheimer’s Society is the UK’s leading dementia charity who campaign for change, fund research to find a cure and support people living with dementia.

Helen Mayne, Alzheimer’s Society’s local services manager, will join us to give an overview of what dementia is, how it can affect people and what support Alzheimer’s Society can provide for people in Northumberland who are living with the condition.

This will include an outline of their recent expansion to services and what it means for people who receive a diagnosis.

There will also be a chance to ask questions.

Register now at the link below and we will send you a link to join closer to the event.

Zoom

Parkinson’s UK free online event

At our next free online public event on Friday 11 March 2022, from 1pm, we will hear from Vivienne Rogerson from Parkinson’s UK.

Parkinson’s is the fastest growing neurological condition. Parkinson’s UK is the national charity, working locally, to provide support for those living with the condition and their family and friends. It is also a campaigning and research organisation.

Area Development Manager, Vivienne Rogerson, will give a brief overview of what Parkinson’s Disease is, what it means for people living with the condition, how Parkinson’s UK supports those with the condition, influences health and social care services and works towards a cure.

The event is suitable for people who live or work in Northumberland and are interested in finding out more about this disease and what support there is locally.

Register now and we will send you a link to join closer to the event:

Events

ME/CFS online event

Online event – ME/CFS and Long Covid

Join us to hear from Russell Fleming, Communications Manager from the ME Association.

Russell has had ME/CFS for 22 years but in recent years has been able to return to work for the national charity. The ME Association provides support and information to those affected, training and advice to health and social care professionals and funds medical research in the hope that one day there will be effective treatments and even a cure.

It also provides advice and support around Long Covid due to its many similarities with ME. We will hear an overview of ME and Long Covid, management techniques and support available nationally and locally.

There will also be a chance to ask questions.

Register now and we will send you a link to join closer to the event: bit.ly/ME-Association-Dec-22

Qwell

Online event – Qwell mental health support

Join us on Friday 11 November to hear from Andrew Poinen, Engagement Lead for Kooth and Qwell.

In this free, online public event Andrew will provide an overview of Qwell, the online service available for adults aged 18 and over in Northumberland which provides free, safe and anonymous mental health and wellbeing support. We will hear what it involves, how to access it and there will be a chance to ask questions.

Register now and we will send you a link to join closer to the event:

Online Event – Stroke Association

Please note this event has been rescheduled from Friday 10 November to Friday 17 November.

Join us on Friday 17 November, 1pm-2pm to hear a presentation from Janet Nesbitt, a volunteer Community Connector from Stroke Association.

In this free, online public event Janet will provide an overview of stroke, including risk factors, stroke effects and what to do if you think someone is having a stroke.

We will also hear about local and national Stroke Association services, including support for stroke survivors and their carers, how to access advice and information and opportunities for volunteering. There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event:

Online Event – Asthma+Lung UK

Join us on Friday 12 August, 1pm-2pm to hear a presentation from Nick Powell from Asthma+Lung UK.

In this free, online public event Nick will provide a brief overview of asthma, COPD, mesothelioma and other lung conditions. We will also hear about the national and local support available from Asthma+Lung UK. There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event:

Online Event – MS Society

Join us to hear a presentation from Sheila Greenwood from the MS Society.

In this free, online public event Sheila will provide information about Multiple Sclerosis and where to go for support for those living with the condition. Sheila will be joined by one of the local network volunteers who has MS to provide a personal perspective into living with the condition. We will also hear about national and local support available from the MS Society.

There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event: bit.ly/MS-Society-June22

Online Event – Diabetes UK

Join us in the run up to Diabetes week to hear from Colin Renshaw from Diabetes UK.

In this free, online public event Colin will provide information about the different types of diabetes and how to manage and live well with the condition. We will also hear about national and local support available from Diabetes UK.

There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event:

National Autistic Society

Online Event – National Autistic Society

Free, online public event to hear from Nellie Allsop from the National Autistic Society who will provide a brief overview of autism and the support available in Northumberland.

Nellie will share an overview of what autism is, drawing on her personal and professional experiences. She will also provide information on how autistic people and their families can access support, both locally within Northumberland and nationally.

There will also be a chance to ask questions.

Register now and we will send you a link to join closer to the event:

Dementia

Online Event – Alzheimer’s Society

Join us on Friday 8 April for this free, online public event to hear from Helen Mayne who will provide a brief overview of Alzheimer’s Disease and the Alzheimer’s Society.

Dementia is a progressive neurological condition and the UK’s biggest killer. Alzheimer’s Society is the UK’s leading dementia charity which campaigns for change, fund research to find a cure and support people living with dementia.

Helen Mayne, Alzheimer’s Society’s local services manager, will join us to give an overview of what dementia is, how it can affect people and what support Alzheimer’s Society can provide for people in Northumberland who are living with the condition.

This will include an outline of their recent expansion to services and what it means for people who receive a diagnosis.

There will also be a chance to ask questions.

Register now at the link below and we will send you a link to join closer to the event.

Parkinson's UK

Online Event – Parkinson’s UK

At this free online public event we will hear from Alastair Jack from Parkinson’s UK.

Parkinson’s is the fastest growing neurological condition. Parkinson’s UK is the national charity, working locally, to provide support for those living with the condition and their family and friends. They are also a campaigning and research organisation.

Their senior area development manager, Alastair Jack, will give a brief overview of what Parkinson’s is, what it means to people living with the condition, how Parkinson’s UK supports those with the condition, influences health and social care services and works towards a cure.

The event is suitable for people who live or work in Northumberland and are interested in finding out more about this disease and what support there is locally.

There will also be a chance to ask questions.

Register now and we will send you a link to join closer to the event: 

Diabetes UK – Type 1 and Tech online event

This year Diabetes UK’s popular online event, connecting the type 1 diabetes community with healthcare professionals and researchers, will take place on Saturday, 16 October from 10:00am to 2:00 pm.

The conference will cover a variety of topics in engaging and interactive formats with a jam-packed agenda of researchers, healthcare professionals and people living with type 1 sharing their experiences.

Sign up for the event here: https://eu.eventscloud.com/t1andtech21

If you have any questions about the event, please contact the type 1 and tech event team: type1andtech@diabetes.org.uk