Drop-in for fishermen and families

Drop-in for fishermen and families

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We’re pleased to be holding a drop-in session with the Fisherman’s Mission in the Harbour Office at Amble Quayside on Monday 26 September, 1.00pm – 3.00pm. The session is for active fishermen, former fishermen and fishing families. Tea and coffee will be provided and the local GP practice will be offering free health checks to visitors.
For more information please contact Peter Dade on 07917 754259 or email PeterDade@fishermensmission.org.uk.
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Share your views about GP referrals

Share your views about GP referrals

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Have you or your loved one struggled to get a GP referral for tests or treatment?

Healthwatch England has been hearing from the public about how hard it can be to get a GP practice referral to another NHS service, and they would like to hear about your experiences.

GPs are the first point of call for many health issues and the gateway to specialist support. But with many GP surgeries stretched thin and under pressure, NHS decision-makers need to understand if people are finding it difficult to get the right help.

Examples of services your GP can refer you to include:

  • Scans or tests for a diagnosis of a condition or health issue
  • Mental health support
  • Surgery for knees, hips and eyes
  • Support like physiotherapy for back pain or arthritis
  • Non-urgent heart problems
  • Wellbeing services, like smoking cessation or diabetes management.

The impact of delayed referrals

GP referrals affect people of every age group, every background, and every region across the country. Some of the things patients have said include:

  • People feel like their symptoms are dismissed
  • They have to try multiple times before they’re successful
  • They are left in the dark about how serious their condition is.

Share your views

As the independent champion of health and social care services, we want to hear your experiences of trying to get specialist NHS support, like physiotherapy, talking therapies, hospital scans and consultations.

By sharing your story, we can use your feedback to help the NHS better understand your challenges and improve how people access the care they need.

Find out more about GP referrals

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What you told us: July 2022

What you told us: July 2022

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Our ‘at a glance’ monthly reports provide a summary of who we have been hearing from and what you have told us. What you tell us helps us build a picture of what is working well and where there are issues in the NHS and social care services we use here in Northumberland. In many cases, we can get a quick response to your enquiries.

Some issues are already being looked at by other organisations and we pass on your comments and concerns to them so that they have as much feedback as possible from those using services.

There are some issues that we look into in more detail and set aside time and resources to investigate further and put together recommendations for change.

Healthwatch Northumberland feedback report July 2022

 

 

 

All change! Join us at our AGM 2022

All change! Join us at our AGM 2022

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You’re invited to join us at our AGM 2022, which this year will be in person at Northumberland College in Ashington.

This year we’ll be hearing about changes being made in health and social care services, from those leading the change. Our guest speakers will talk about integration of services and the increasing use of digital in care.

We will be giving an overview of our work over the past year as your local health and social care champion and we’ll also hear from health and social care students from the college about why they have chosen to work in the sector.

The event is on Wednesday 19 October starting at 10.30am. After the event there will be a light lunch provided. This will be a chance to chat with our team, our speakers and other guests which will be a mix of service providers, members of the public and health and social care students from the college. Please let us know if you have any special dietary requirements.

If you’d like to submit a question in advance please get in touch.

 

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Watch our Asthma+Lung UK online event

Watch our Asthma+Lung UK online event

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Thank you to everyone who came along to our online event with Nick Powell from Asthma+Lung UK on Friday 12 August.

Nick gave a presentation about the work of Asthma+Lung UK and the support available both nationally and locally for people living with asthma, COPD, mesothelioma and other lung conditions. There was also a chance to ask questions at the end.

If you didn’t get the chance to join the session you can watch the recording of the presentation below.

Sign up to our newsletter to be the first to hear about upcoming events.

Things I wish I had known before my loved one went to live in a care home

Things I wish I had known before my loved one went to live in a care home

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Hearing feedback from relatives of those in care homes, we know that the process of moving into a care home can be a very isolating and upsetting time. There are many different emotional and practical aspects to consider.

Sometimes decisions and choices have to be made very quickly. Even when there is more time to plan, there can be smaller, unexpected issues that arise and make you think ‘I wish I had known this before my loved one went to live in a care home’.

This list was put together by people who attended our care homes forums in 2021 and 2022. It is a simple list of things to think about and comes from their experiences of having a loved one living in a care home.

There will be other things which we have not thought of and if you have more ideas and tips, please let us know and we will add them in.

Things to do

  • Provide more socks than you think will be needed – with recognisable patterns
  • Provide slippers – two pairs at least
  • Keep a supply of clothes at your home to top up/replace items as needed
  • Label everything – clothes and other items – with your loved one’s name. They may change rooms but not their name!
    – iron in labels for clothes and shoes in addition to the home’s own labelling
    – use indelible marker to write name or room number on TV remotes and ornaments
  • Check if you can you use your own bed linen and/or curtains
  • Ask if you can move in small items of furniture. A small side table that sits against a wall gives a nice focal point for ‘knick knacks’ without taking up space
  • Think about things that brighten a room immediately – pictures, trinkets, lamps, throws, cushions, but nothing too valuable or fragile in case of breakages/loss
  • Put a favourite picture of your loved one when they were younger in a prominent place
  • Buy a spare remote control for the TV
  • Think about a small Christmas tree and decorations. Ask family and friends to send cards directly to the person in the home so they feel part of the celebrations.
  • Supply games, picture books etc. to help with visits
  • Take scented drawer liners which add a nice touch to a room

Things to know

  • Labelling is very important but things will disappear, move around the home and reappear – both in and out of your loved ones room
  • Remember to say hello to other residents – you are in their home
  • Care home tea is usually very milky!
  • Care homes can be very warm – wear layers
  • Are meal times protected – is visiting not allowed at this time or can you visit to help your loved one eat?
  • Find out the arrangements for Christmas – are you able to visit or take your loved one out of the home?
  • Leaving your coat and handbag in the car or in the manager’s office, so that you can slip out, can make leaving after a visit less stressful for you and your loved one.
  • Does the home arrange ‘virtual’ visits – who does them and how is your loved one supported to interact with the call?
  • It might be reassuring to ask what a ‘typical day’ looks like for your loved one
  • Visiting can be upsetting so it can be an idea to have someone to talk to afterwards or have a relaxing activity planned

Get in touch

If you’d like to speak to us about your experiences of care homes, care home visiting, information about care homes in Northumberland, or would like to know more about our forums, please get in touch.

 

Download the list as a PDF

Your Care, Your Way – what you said

Your Care, Your Way – what you said

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Healthwatch England has published new findings, which show services are failing in their legal duty to provide accessible information for people with physical and learning disabilities.

As part of the Your Care, Your Way campaign, between March and May 2022, an online survey was carried out which heard from 605 people affected by communications challenges.

People being refused communication support

One in four respondents (28%) – including deaf, blind and people with learning disabilities – said they had been refused help when requesting support to understand information about their healthcare. This included information being provided in formats such as Braille, British Sign Language and Easy Read.

Not being given information in the right format affected people’s mental health and wellbeing (38%), meant they missed out on important information about their health (29%) or meant that they could not contact a service they needed (27%).

Respondents also reported that the quality of communication from NHS and social care services had worsened over the last two years. Two-thirds (67%) felt that the way health and care services communicate with them had gotten worse or slightly worse over the course of the pandemic.

Impact on people who have mental health conditions

It is not just people with sensory impairments or learning disabilities who are affected by this issue.

A fifth (22%) of those who reached out to Healthwatch to share their experiences identified themselves as having a mental health condition, such as depression or anxiety.

Of these people, 35% reported they rarely or never get the support they need to understand healthcare information or communicate with staff. The majority of them (70%) also said that the lack of information in a format they could understand further impacted their mental health and wellbeing.

Why we need better Accessible Information Standard

The findings come as NHS England (NHSE) is conducting a review of the Accessible Information Standard (AIS). The Government created this legal requirement in 2016 to ensure all publicly funded health and social care providers meet the information and communication needs of people who are deaf, blind or have a learning disability. Publication of this review is expected later in the year, with updates to be implemented by April 2023.

Earlier this year, Healthwatch England uncovered that many health and social care providers significantly failed their duty to ask about people’s communication needs and then act on this information.

They joined forces with leading disability organisations, including RNIB, RNID, Mencap and SignHealth, to inform the long-awaited review of the AIS. The coalition called on NHSE to take on board their recommendations, including stronger accountability across services to protect people’s rights to accessible information.

Louise Ansari, national director at Healthwatch England said:

“Our findings are a stark reminder that some of the most vulnerable people in our society are still excluded from access to healthcare because they communicate in British Sign Language or they need information in visual formats. And this is despite the fact that their rights to accessible information are protected in law.

“People’s right to accessible information should be based on their communication needs, not just on a diagnosed disability. For instance, people who have a mental health condition or are waiting for a diagnosis should have a right to request communication support in the same way as people who have a sensory loss or a learning disability.

“If people cannot get information about their healthcare they understand, this can have a significant impact on their mental health and can lead to them missing doctor’s appointments or taking the wrong medication, putting them in danger.

“As we are waiting for the review of the Accessible Information Standard, we strongly advise that NHSE and the newly created 42 integrated care systems ensure equitable access to healthcare for everyone.”

Find out more about the results of the accessible information survey

Get in touch

If you would like to tell us about your experience of accessing health and social care services in the last 12 months please get in touch.

Online Event – Asthma+Lung UK

Online Event – Asthma+Lung UK

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Join us on Friday 12 August, 1pm-2pm to hear a presentation from Nick Powell from Asthma+Lung UK.

In this free, online public event Nick will provide a brief overview of asthma, COPD, mesothelioma and other lung conditions.

We will also hear about the national and local support available from Asthma+Lung UK. There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event: 

 

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Mental health services and autistic children

Mental health services and autistic children

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Are NHS mental health services working for autistic children and young people?

We have been hearing from local families that some NHS mental health services aren’t working for them. To understand what is happening, we would like to hear about the experiences of as many autistic children and young people as we can. This includes children with a formal autism diagnosis, currently being assessed, or where there is an indication of autism. We want to know what is working well and what could be better.

Please tell us about your family’s experiences online, or by getting in touch in a way that suits you.

What you tell us will be included in a report to those who pay for and provide these services, along with recommendations of how services could be improved for children and young people. It will be anonymous and we will ensure you cannot be identified.

Read what Sarah, Ellie and Jennifer have to say and then tell us your story…

Parent Sarah says “For both of my children it took several years to get a diagnosis of ADHD and autism. Both have had issues with their mental health alongside their ADHD and autism. The delay in diagnosis impacted negatively on their mental health and both also experienced additional deterioration after Covid-19.

“Many different health and care services have been involved with my children, but these services are unfortunately not all joined up. Often referrals would be accepted for support but then discharged on the basis that other services were already involved or were better suited to provide support, care or treatment. When support has been received this is time-limited or specific to concerns at any one time leading to the process of needing to fight to seek help again later down the line.

“My children’s mental health difficulties have been seen as being ‘part of their autism’ rather than a separate condition that required treatment and help. This has led to difficulties and challenges getting the right support and most appropriate services involved for their mental health. Many people on the autistic spectrum have anxiety and mental health issues. This is not autism but the effect of having to adjust to the world around them and the many challenging situations they face.

“What has been most difficult is that every step of the way I have had to fight to get the right support my children need, challenging what we have previously been told and doing a lot of research ourselves. At times we felt we were not being listened to. It feels like we have had to become specialists in our own right, whilst also caring for children with additional needs that can be very challenging.”

Young person Ellie told us “The mental health professional I saw at the NHS didn’t seem to know very much about autism, so they didn’t realise that the appointments themselves were very stressful for me. I don’t think they always believed me when I said how bad I was feeling because on the surface I appeared to be okay.

“My mental distress at the time was extremely high and I was experiencing some very dark thoughts, but I didn’t feel listened to or understood. I would have liked to have had someone like my dad with me at the appointments but that wasn’t an option because they were held at school.

“My mental health has slowly improved since then but that’s because I started seeing someone privately who has experience of working with autistic people. I feel very lucky about this because I know not everyone would be able to afford it.”

Jennifer, whose child is autistic, says “The initial relief of my child being provided mental health support was quickly replaced by concern, as instead of getting better they got worse. A lack of knowledge and understanding about autistic presentation meant the therapist didn’t connect authentically with my child, who in turn felt invalidated by the whole experience.

“The number of sessions offered was limited and at the end of the programme I was shocked to find my child didn’t reach the threshold for further support. Instead, we were provided with a list of community-based support organisations and left to fend for ourselves. As a parent I now have a complete lack of confidence and trust in the NHS mental health system.”

Tell us YOUR story

Whether your child may be autistic, is currently being assessed or has a formal autism diagnosis, we’d like to hear their experiences of mental health services. We’d like to know what went well and what could have been better. Tell us your story online, or if you’d prefer to speak to one of our friendly team in confidence, please get in touch.

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Annual Report 2021/22

Annual Report 2021/22

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Championing what matters to you

 

Our Annual Report 2021/22 gives an overview of our work over the year. Filled with local photographs from all four corners of the county, the report highlights how we made a difference to people in Northumberland who use health and social care services.

You told us about your experiences of local pharmacies, home care, dentistry and GP services, helping providers know what matters to you and ensuring your views are included in plans for these services. Our Signposting and Information Service enabled over 3000 people to find out more about support and services in our area, and you can find examples of how the service provided confidential support and information.

View the Healthwatch Northumberland Annual Report 2021/22

or download a pdf version.

 

 

Tell us about the NHS and social care service you and your family have used recently.