Arthritis Action logo, laptop, cup of coffee and reading glasses

Online event – Arthritis Action

Online event – Arthritis Action

Join us for our next online lunchtime event on Friday 9 June, 1pm-2pm. Ruth Smith, Engagement & Events Coordinator for Arthritis Action, will be joining us to talk about arthritis, self-management and resources for people living with the condition.

She will cover topics including pain management, diet and keeping active for those who may be new to exercise but want some tips on how to start.

This session is suitable for people who live or work in Northumberland and are living with or working with any form of arthritis, including osteoarthritis, inflammatory arthritis and gout. The presentation may also be useful for those with other conditions causing joint pain such as fibromyalgia.

There will be a chance to ask questions.

Register now and we will send you a link to join closer to the event.

If you would like more information or would like to tell us about health or social care services you have used please get in touch.

This event has now passed

Cost of living - a black lady stands against a doorframe looking stressed

Cost of living

Cost of living – a barrier to healthcare for the most vulnerable

The cost of living is having a detrimental impact on people’s decisions about their healthcare.

If you are disabled, on means-tested benefits or aged 18-24, research shows you’re more likely to avoid vital health services due to the fear of extra costs. Healthwatch England has set out immediate actions for the government and the NHS.

Over the last year, many charities and campaign groups have warned that millions of people are struggling with the cost-of-living crisis.

To understand the scale of this impact, especially on people’s health and their use of health and care services, Healthwatch England commissioned a poll of people in England.

Findings from waves 1 and 2 were reported on earlier this year.

Key trends

The poll of 2000 adults in England, conducted four times between October 2022 and March 2023, suggests that people are increasingly avoiding vital health and care services due to the fear of extra costs. These include:

  • going to a dentist because of the cost of checks ups or treatment
  • booking an NHS appointment because they couldn’t afford the associated costs, such as accessing the internet or the cost of a phone call
  • buying over the counter medication they normally rely on
  • taking up one or more NHS prescriptions because of the cost.

Rising costs further exacerbate health inequalities

The research also highlighted that the financial burden of healthcare is weighing heavily on specific groups:

  • people on disability benefits
  • people on means-tested benefits
  • and younger people, aged 18-24.

People from these groups are more likely to be making tough decisions to avoid essential services. Examples include:

  • People on disability benefits are over twice as likely to have avoided their usual over-the-counter medication than the general public, 15% compared to seven per cent.
  • 20% of people on means-tested benefits have avoided booking an NHS appointment due to the associated costs, including the internet or phone call, compared to six per cent of the general public.
  • People aged 18 to 24 are twice as likely to have avoided an NHS appointment due to travel costs compared to the general public, 14% to six per cent.
  • On average, one in five people from each group avoided the dentist because of the related costs.

The cost of living should never be a barrier to care

As a patient champion, we are worried that vital health and care services are out of reach for many people.

We know that people living with ill health and disability are already much more likely than others to be pulled into poverty because of spiralling costs.  Making decisions between eating, medications and keeping medical devices running, can further impact their physical and mental health, putting them in danger.

The cost of living should never be a barrier to healthcare.

Recommendations

While we welcome the support already in place, social tariffs and schemes must be better communicated to the people who need it.

This includes ensuring that:

  • Communication providers communicate about and signpost to social tariffs
  • Primary care teams make people who need medication aware of pre-payment options
  • Dentistry teams offer check-ups based on individual need, to free up more NHS slots
  • More people are aware of the Healthcare Travel Cost Scheme (HTCS).

The government working with health and care services must also go further to support people in the cost-of-living crisis.

Tangible actions

Healthwatch England has set out immediate tangible actions:

Prescriptions 

Guidance should encourage GPs to offer people over-the-counter medications on prescription based on socioeconomic grounds.

Travel 

NHS England should re-open its review of the HTCS, and introduce reimbursement for journeys to people’s GP, dentist and pharmacy teams.

NHS freephone 

NHS England should work with Ofcom and telecommunications companies to ensure that hospital and GP phone numbers are part of the freephone service, so cost is never a barrier to phoning a health service.

Benefits system 

Government should ensure benefits, including Statutory Sick Pay (SSP), keep pace with inflation in real terms.

Government should also extend the amount of time SSP can be paid to people who can no longer work due to long waits for NHS treatment. One in ten people wait over four months for a GP referral, and 92% of people on waiting lists are currently waiting up to 46 weeks for a hospital appointment. This means that the current 28-week access cannot support those who need it.

Broadband

Health leaders and regulators should look at what more can be done to ensure telecommunications providers introduce and raise awareness of social tariffs to eligible households, as the uptake of this support remains low.

Recent research by Citizens Advice suggests that up to one million people have cancelled their broadband in the last year because they couldn’t afford it.

As we increasingly move to more remote ways of communicating, tracking, managing and attending NHS appointments, we must ensure that everyone can access the support they need.

 

If you would like to tell us about your experience of the cost of living and how it has affected health and social care services you have used please get in touch.

Autistic young people and mental health services Northumberland

Autistic young people and mental health services

 “We’re scared parents with even more scared children”

Are NHS mental health services working for autistic children and young people?

 

We heard from local families that some NHS mental health services aren’t working for their autistic children. To get a better picture of what is happening we asked people living in Northumberland to tell us about their experiences of mental health services including what is working well and what could be better. We heard from parents and carers of children and young people with a formal autism diagnosis or currently being assessed, or where there is an indication of autism. We asked for feedback on the different services that families were involved with such as school nursing, Children and Young People Service (CYPS), Primary Mental Health Work Service (PMHW), Universal Crisis Team (UCT), and any other services with which they may have been in contact.

We worked with parents and carers to create our feedback form to make sure the information we were asking for was appropriate and gave enough opportunity to provide relevant feedback on the services. Thank you to everyone who shared their views and experiences with us and helped to promote this piece of work.

We are aware there are issues not only in Northumberland but also nationally with recruitment and retention of staff across the health and social care sector as a whole, and we appreciate that the feedback should be considered within this wider context.

This report is an overview of out findings and key recommendations on the issues raised by parents and carers of autistic children and young people who live in Northumberland and use, or have used, NHS mental health or autism diagnosis services.

Autistic young people and mental health services report

Ponteland High School wins wellbeing hamper

Ponteland High wins our hamper!

We recently ran a campaign to help us hear from young people aged 13 – 24 who live in Northumberland. We wanted to hear how they were feeling, which healthcare services they had recently used and what their experience had been. To help us reach young people we worked with a number of schools in the county. They helped by distributing information about the campaign, the links to the online form and signposting information to services and organisations providing care, support and advice for young people. As an incentive we were able to offer a £100 Love2Shop voucher in a proze draw to one person who gave us feedback – the winner of the voucher was a student of Castle School in Ashington.

We also offered a wellbeing hamper to the school with the highest percentage of students completing our form. The winner was Ponteland High School – congratulations to them! Pictured is Jonny Greenshields, Assistant Head Teacher at Ponteland High School, being presented with the hamper by our Communication and Marketing Officer, Claire. Jonny told us “We’re very happy to have won the wellbeing hamper as part of this campaign. We scheduled this into lesson plans and the campaign fit extremely well with the work we have been doing with students around ‘having a voice’ in varying aspects of life, from democracy to healthcare.”

The results of this piece of work will be published later in the year.

Berwick Hospital development

Update on new Berwick Hospital

Temporary changes to inpatient care at Berwick Hospital as building work progresses

The building of the new £35 million hospital in Berwick-upon-Tweed is now at a stage where changes to inpatient care are needed to ensure that the new hospital will open on schedule towards the end of 2024.

A new temporary 10-bed inpatient ward will be installed in the maternity car park while the hospital works continue. This is necessary to ensure that patients can remain on the hospital site in Berwick rather than be cared for elsewhere in Northumberland.

Some patients that would usually be admitted to Berwick Infirmary will be cared for in Alnwick depending on their clinical need.

Relocation of the ward will ensure the best completion date so that people from Berwick and other local communities can access the new 20-bed hospital as quickly as possible.

Maternity, oncology, ambulatory care and minor injury unit services will remain within the Berwick Infirmary building and will not be affected.

Northumbria Healthcare is working with Northumberland County Council to ensure that maternity patients have access to parking nearby.

Once the frame of the new hospital is up, stairs and floors will be installed along with an accessible rooftop. The building will be clad and glazed externally to weatherproof it and the building will be fitted out.

Finally, the remaining old hospital buildings will be demolished, the car park and access roads will be built, and landscaping work completed.

Read more about the developments at Berwick hospital

Get in touch if you would like to tell us about a health or social care service you or a loved one have used.

NENC NHS logo

Making a complaint

Making a complaint about primary care services in Northumberland

How you make a complaint about primary care services in Northumberland is changing on 1 July 2023. By primary care services we mean GPs, dentists, opticians or pharmacy services.

You have the right to make a complaint about any aspect of NHS care, treatment or service.

There are two ways you can make a complaint:

  • You can complain to the healthcare provider: this is the organisation where you received the NHS service, for example a GP surgery or dental surgery.
  • You can complain to the commissioner of the service: this is the organisation that paid for the service or care you received.

After 1 July 2023 if you want to make a complaint about primary care services to the commissioner you will now contact the North East and North Cumbria (NENC) Integrated Care Board instead of NHS England.

You can do this by:

Telephone: 0191 512 8277

Email: necsu.pccomplaints@nhs.net

In writing to the following address:

Primary Care Complaints Team

North East and North Cumbria ICB

Riverside House

Goldcrest Way

Newburn

Newcastle Upon Tyne

NE15 8NY

If you want to make a complaint directly to the provider of the primary care service, you still can – that does not change on the 1 July 2023.

Members of the public with ongoing complaints received on/after 1 July 2023 will receive a letter from NHS England informing them that the ICB is now handling their complaint with confirmation of their case handler.

Members of the public with any ongoing complaints received before 1 July 2023 will receive a letter from NHS England informing them that their complaint is being retained by NHS England with confirmation of their case handler.

Any complaints about secondary care can be made either to the hospital trust or to the ICB at the following email address: necsu.complaints@nhs.net

Find out more about how to feedback or make a complaint about an NHS service 

To find out more about health and social care services and support in Northumberland please get in touch.

Health and social care feedback Northumberland April 2023

What you told us: April 2023

Health and care feedback Northumberland April 2023

The main issues we heard about in April were accessing GP services, and the quality of service when seen, hospital service and access to NHS dentists – we are still hearing from people about the lack of provision in Berwick-upon-Tweed.

Our main focus this month was passing on to the council and the NHS what we heard from you at our Here to Hear drop-in sessions. We promoted the COVID-19 spring booster vaccination programme and our public online info session this month was around disordered eating, with guests from Eating Distress North East.

Read our short report below to see at a glance who we heard from during the month and the services we heard about.

 

Healthwatch Northumberland report April 2023

Pharmacy shelf and iPad

Closure of Lloyds pharmacy

Lloyds pharmacy in Sainsbury’s, Manor Walks, Cramlington is due to close this summer on a date yet to be confirmed. As your independent local health and social care champion, we would like to hear from residents and those who use the pharmacy about how the planned closure may affect them.

Our team have been at Lloyds pharmacy during May 2023 talking to customers about the potential impact of the closure of the pharmacy. We will continue to collect feedback over the next few weeks and you can still share your views online.

We have already been able to take what we’ve been hearing and share it immediately with decision makers, so that they can understand and act upon the issues raised. Our Project Coordinator Derry presented our findings so far to the Northumberland Health and Wellbeing Board on 11 May. You can watch the meeting below – Derry speaks from around 18 minutes in.

Health and Wellbeing Board meeting 11 May 2023

If you would like to speak to us please get in touch.

Three people with learning disabilities talking to each other

Help make care better

Help make care better in Northumberland for people with learning disabilities

People with a learning disability and autistic people are more likely to experience poorer care and face inequalities, despite needing to use health services regularly. Their needs are not always met by the system, leaving people and their loved ones feeling diminished or ignored.

Have your say

We are working with Healthwatch England to hear more from autistic people and those with learning disabilities about their experiences of care. Please share your experience and help us make NHS decision-makers aware of what needs to change to improve access to care.

We’re completely independent and impartial, and anything you say is confidential.

Share your story

You can also provide feedback on care by giving us a call on: 03332 408 468